This is a list of posts by both authors that address questions of health and disability. Thom's posts (listed first) address his personal health challenges, which he described as "extensive and life changing", as well as disability awareness in general, which was very important to him. (The latter group includes two poems by others.) Amy's posts (toward the end) address her experiences as a child and young adult with a seriously ill parent and as a medical student, pediatric resident and pediatric oncologist.
Thom was a long-term survivor of Hodgkin lymphoma, diagnosed when he was 20 years old. He was initially given a very poor prognosis of six months or less and was treated with a staging splenectomy and mantle irradiation at the University of Virginia, using one of the first linear accelerators. He relapsed twice and was treated with more radiation. He eventually lost all sensory and motor function in his left arm due to radiation-induced brachial plexus (nerve) injury. He also survived pneumococcal septic shock, related to the absence of his spleen, and an early heart attack, which was, by then, a well-known late complication in Hodgkin's survivors. Eventually, he developed heart and lung failure, also radiation-related, which was further complicated by recurrent infections of multiple pacemaker-defibrillator devices.
Although he needed supplemental oxygen for the last few years of his life, he continued to be very active, teaching full-time until his death. His heart stopped suddenly and peacefully on February 9, 2014, forty-five years after his cancer diagnosis. He was an extraordinary father, teacher and human being, and Amy continues to write this blog in honor of his life and legacy.
Thom's posts:
The Sally Effect
Too Bad, But I Got There First
Beatitudes For Those With Disability
Through The Looking-Glass
Blogging Against Disablism Day
undifference
Scar Wars
There Are More Hands Than Heads, Usually
Missing Extremities
Can I Get A Hug
The Keepers And I
18 Days Later ...
Amen And Resurrection
There Will Be Bread
The Aches Of Wrap Christmas
Desperately Seeking Parking
I Now Pronounce You Oneshoeshy
Postponement
It's Never Too Late
The Dance
A Gentle And Tender Touch
Guitar, Interrupted
Poems With Disabilities
Ouch!
Minority Report
To Sleep, Perchance to Dream
Epic Fail
Musing About Disability I
Lean On Me
There's Something About Hands
My Wayward Shoelaces
Amy's posts:
"Some of it's magic, some of it's tragic"
Native Language
The Social Unacceptability of Being a Pediatrician-Mom
Gone Girls: A Discussion of Campus Safety and Sexual Assault
Confessions of the Hidden Curriculum
1 in 330
Vigils
Celebration of Life: Amy's Reflection on a Father's Love
Thom was a long-term survivor of Hodgkin lymphoma, diagnosed when he was 20 years old. He was initially given a very poor prognosis of six months or less and was treated with a staging splenectomy and mantle irradiation at the University of Virginia, using one of the first linear accelerators. He relapsed twice and was treated with more radiation. He eventually lost all sensory and motor function in his left arm due to radiation-induced brachial plexus (nerve) injury. He also survived pneumococcal septic shock, related to the absence of his spleen, and an early heart attack, which was, by then, a well-known late complication in Hodgkin's survivors. Eventually, he developed heart and lung failure, also radiation-related, which was further complicated by recurrent infections of multiple pacemaker-defibrillator devices.
Although he needed supplemental oxygen for the last few years of his life, he continued to be very active, teaching full-time until his death. His heart stopped suddenly and peacefully on February 9, 2014, forty-five years after his cancer diagnosis. He was an extraordinary father, teacher and human being, and Amy continues to write this blog in honor of his life and legacy.
Thom's posts:
Too Bad, But I Got There First
Beatitudes For Those With Disability
Through The Looking-Glass
Blogging Against Disablism Day
undifference
Scar Wars
There Are More Hands Than Heads, Usually
Missing Extremities
Can I Get A Hug
The Keepers And I
18 Days Later ...
Amen And Resurrection
There Will Be Bread
The Aches Of Wrap Christmas
Desperately Seeking Parking
I Now Pronounce You Oneshoeshy
Postponement
It's Never Too Late
The Dance
A Gentle And Tender Touch
Guitar, Interrupted
Poems With Disabilities
Ouch!
Minority Report
To Sleep, Perchance to Dream
Epic Fail
Musing About Disability I
Lean On Me
There's Something About Hands
My Wayward Shoelaces
Amy's posts:
"Some of it's magic, some of it's tragic"
Native Language
The Social Unacceptability of Being a Pediatrician-Mom
Gone Girls: A Discussion of Campus Safety and Sexual Assault
Confessions of the Hidden Curriculum
1 in 330
Vigils
Celebration of Life: Amy's Reflection on a Father's Love
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